Radiation

Tuesday May 31

Today we had an appointment with Dr. Clark a radiation oncologist.  Since we can not move forward with Chemo for right now we thought we would address is spot on the pelvic bone and the spot on his spine.  After speaking with Dr. Clark about what our plans where with MD Anderson he thought we were heading in the right direction also.  So in the mean time we would be treating Cody with radiation on these two spots. 

Later that day after speaking with our rep from MD Anderson he informed us that we had been accepted and denied in the same day.  They accepted us which they don't do unless they feel like there is something they can do for you.  and our insurance denied us from going.  He began to tell us that we could still come, but our insurance would not cover it.  We asked what the cost would be just for us to have a consult with the Dr.  Never mind that we will fight our insurance and appeal with them.  What a frustration we were feeling.  How somebody else gets to dictate what you get to do with your life. 

Year Anniversary

Friday May 27

So one year ago today is when our lives flipped upside down.  Cody was diagnosed one year ago today.  This morning Cody received a call saying that Dr. Rich had spoke with the Dr. from MD Anderson and that we needed to come into his office and receive the bone hardener drug Zometa.  Now that we know of the two spots in his bones which can weaken them he needs to build them up to prevent injuries.  Everything we have heard about this drug has not been great.  They say you will feel like you've been hit by a freight train.  Cody was not looking forward to this at all. 

While we were there Dr. Rich told us that we had an appointment with MD Anderson on June 10th.  We were so excited about this.  We just needed to confirm with them Tues morning. 

Needless to say the drug held up to its reputation.  Cody felt like crap the next two days all he wanted to do was sleep and scream.  This was the first time I've ever seen him take any of his pain pills.

Round 5 of Chapter 4

Wednesday May 25

Well today was suppose to be another round of Chemo, but since his tumor counts keep creeping up we opted out of Chemo for now.  There was no reason for us to keep injecting him with all the poison for it to not be working.  So for now we wait and see if M.D. Anderson is in our cards. 

It was kind of a bitter sweat feeling knowing we were done for now.  We sure are going to miss our friends in the Chemo room and of course our wonderful nurses.  

Kindergarten Graduation

Wednseday May 25

Today was Tenlies big day Kindergarten Graduation.  Mom is still having a hard time with this.  I'm not quit sure i'm ready for my little girl to grow up.  Their program was really great and she did such a great job on her speaking part.  They counted, sang a song and some colors in all 3 of the languages they had this year, which were Spanish, Chinese and Arabic. 

Here she is with her Teacher Mrs. Ward which we absolutely just loved.

Pre-School Graduation

Tuesday May 24

Well Stetson has officially Graduated from his first year of Pre-school.  This school year has flown by for me.  I'm not sure I'm ready for my kids to grow up.  He did such a great job.  They sang all their favorite songs, performed the pledge and then Mrs. Amber put together a video of them from through out the year.

Stetson award was the most entertaining child in class.  He is very active and outgoing.

He loved Mrs. Amber and always was asking if he could go to school even on the days he had off.  We will miss Mrs. Amber next year considering she decided that this was her last year.

Pet Scan

Wednesday May 18

Well Cody was back for another Pet Scan which he was not very thrilled about, but knew it was a necessity.  These usually only have to be done every 6 months, but considering that Cody's tumor counts kept going up they wanted to get a good picture of what was happening.  Cody said the test its self is not bad its the process you have to go through before the test.  He has to be in a dark room by himself for an hour and a half with nothing but his thoughts.

Before this test Cody and I have made the decision that its now time to try and get accepted to MD Anderson in Houston Texas.  They are rated number one in both Colon cancer and Liver Cancer.  We feel that we are coming to a road block here and maybe just maybe they may have some different ideas.  We can only hope and pray.  We are in the process of submitting all his paper work and tests.

We were able to get the results to his test the very next day and are extremely grateful for that.  Cody's colon is still clean YEAH!!! His liver has grown alittle more since the last Pet scan in Feb and his tumor on his Pelvic bone has grown also.  They also found a spot on the bottom of his spin and several limp nodes near his liver. 

Dance Comp

Saturday May 14

Well this is the last of the competitions for this year. The girls have had such a great time together.  We really did have a great team for their ages, but I may be a little bias since it is my daughters team.  

The girls had such a great time behind stage as they did on if you notice in the pictures they had a great time playing games.

I'm still trying to figure out my camera so the pictures of their dances didn't come out so great.

One of Tenlies favorite thing was to stay for the awards.  We were just so grateful that they got trophy's or they may have been disappointed.

It has been so fun to watch these cute girls grow through out the year.  I'm so proud of our little Tinkerbell you have grown so much and have blossomed into quit the dancer.